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ADVOCACY NEWS
Winter 2006

In California , we continue to work on several key issues, but it also seems important to note the accomplishments of 2005.  As a result of many of you advocating for issues at the State level, the following key issues can be considered successes of the 2005 legislative year:

 

We delayed the expansion of Medi-Cal managed care until the State could more carefully incorporate the components that will better serve frail and cognitively impaired elders.

  We were involved in promoting a State Auditor General investigation of the Department of Health Services' appalling record in responding to families' complaints of nursing home abuse and neglect.
  Our Advocates overwhelmed the Governor with more than 100 letters urging his signature on a bill strengthening the elder financial abuse law.
  We were the focus for a highly successful Spotlight on Alzheimer's Disease for Stem Cell Research at the Capitol.   Speakers included an Early Stage individual, Sherrie Matza of our chapter Board, and an Alzheimer's researcher;   each discussed elements of information on, and life with, Alzheimer's disease.
  We increased Alzheimer's research funding in California by raising more than $525,000 through the income tax check-off.
 

Our efforts won reinstatement of the State Alzheimer's Advisory Committee which will give an effective and visible voice on our issues at the State which will influence legislation affecting people with Alzheimer's disease.

Two key issues we will be following for this coming year are:

 
1. At the end of the year last year, Senator Dianne Feinstein offered an amendment to the National Medicaid Bill to protect California's Adult Day Health Care Program.   Since last year the federal Centers for Medicare and Medicaid Services (CMS) has been pushing for major changes in how the Adult Day Health Care program operates in California and seven other states.  If implemented, these changes would significantly reduce participation by persons with Alzheimer's and other dementia disorders, forcing most into nursing homes.  We have been supporting the California Association of Adult Day Services' national strategy to have an amendment included in the national Medicaid bill to grandfather in the eight states and allow them to continue providing these services as a Medicaid optional state benefit.  Traditionally, National does not become involved with issues that don't affect all the states; but we are hopeful that since eight of the larger states are threatened, they will communicate their support to the conferees.
2. We continue our efforts to renew the Caregiver Tax Credit, but unfortunately we have met with little success in gathering support from Senator Perata in helping to move the Caregiver Tax Credit extension (AB 298 Berg).  He currently is holding all tax credit bills.  We are hopeful that an improving fiscal situation for the State will help us keep this important Caregiver tax incentive on the table.  In the meantime, we will be meeting with key legislative staff to discuss other policy changes to support family caregivers.

 

Federal issues

Medicare Part D Prescription Coverage began January 1, 2006 and at the end of December the United States Pharmocopeia changed the guidelines that would allow inclusion of all the Alzheimer's Medications on the new formulary, so it is possible that Plans will cover some, but not all the medications for Alzheimer's disease.  We are working with the Centers for Medicare and Medicaid Services to reverse or clarify this unfortunate change that may keep our family members from getting coverage for the medications they are taking to treat Alzheimer's disease.

Budget Legislation passed by the Senate at the end of December was extremely disappointing.  Three Medicaid (Medi-Cal) changes were made in the law regarding asset recovery, and look back periods for eligibility, that will have a negative effect for our families.  These changes may put nursing homes in the position of either kicking out residents who may be declared ineligible after they are already admitted, and it may prevent people from getting into facilities in the first place.  We are calling on Congress to create a special monitoring program that will collect information on who is being denied access to help, and to work on meaningful and dramatic reform of our nations long term care system, especially as it affects older Americans and people with chronic illnesses like Alzheimer's.

 

 

Alzheimer's Association
Northern California & Northern Nevada

1060 La Avenida
Mountain View, CA 94043

Local Offices Throughout Northern California & Northern Nevada

Helpline 24/7 (California):
800-272-3900
Helpline 24/7 (Nevada):
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